Living With CFS

I have a condition/chronic illness called Myalgic Encephalomyelitis (ME) or otherwise known as Chronic Fatigue Syndrome (CFS).

Chronic Fatigue Syndrome affects my energy levels and my health.

Small colds knock me down for weeks or months, which make it hard to become healthier.

After catching COVID-19 in early 2021, my symptoms became significantly more severe. A year later I am still suffering from the effects of COVID-19.

I am bed bound almost everyday, and house bound almost every other.

I am tired all the time, even if I sleep for long hours. I am usually in pain most days, with chronic coughing that I can not fix, joint pain and muscle pain. Whenever I move, I often come over feeling sick and dizzy, with heart palpitations and I become light headed.

When I am outside, I become overwhelmed with all the sounds, smells and visuals and my symptoms get worse.

I have no physical respite, and I also have no mental respite.

I have problems with my thinking, memory and concentration. I struggle to remember events, past or future.

I am on a journey to try and recover from my Chronic Fatigue Syndrome.

We manage what I do every day, so I have enough energy to do the things I love with minimal consequences.

My mum and dad have recently got me a wheelchair, so I can travel to the places that make me happy when I can’t move much without being in pain and becoming over tired.

Despite how ill I feel every day, how much pain I am in and how tired I am, I would not change who I am today.